
AboutShe can be contacted at cheryl [at] americasfuture [dot] org. Read my other blog. The one that's not obnoxious and self-absorbed! Recent publications"Scary Rise of the 'Sanctimommy'" in The Washington Times "Why Malamud Faded" in Commentary "Blogging Infertility" in The New Atlantis "Outsourcing Childbirth" in The Wall Street Journal "The Painless Peace of Twilight Sleep" in The New Atlantis "The Genius of Old New York" in The Claremont Review of Books "Parenthood At Any Price" in The New Atlantis "Modern Girls and the Moral Revival They Are Leading" in The Washington Times ARTICLE ARCHIVE Links |
Monday, February 4, 2008 This might all sound far out or outlandish, but it got me re-thinking many of the questions I discuss in an upcoming article on fertility bloggers in The New Atlantis. What does it mean to be infertile? Is infertility a "lifestyle choice" or a medical condition? And are the infertile really a unified bloc or community? Melissa's post puts these questions into sharp relief, particularly the divide between the socially or functionally infertile and the biologically infertile. People might not be having children with robots anytime soon, but many of the functionally infertile are--e.g., gay and lesbian couples, single mothers by choice, older mothers, etc. Do their interests diverge with those of the biologically infertile? Melissa is pretty optimistic on this front. Her post ends with the suggestion that as more people join the ranks of the functionally infertile, there will be more understanding and sympathy for all infertiles. I have my doubts, especially when it comes to the holy grail of infertility activism: mandated coverage for infertility. It seems here that the interests of the functionally infertile and socially infertile diverge. Most states that mandate coverage have some kind of criteria for who's eligible: e.g., age limits, married heterosexual couples only, etc. This seems unlikely to change, especially as health costs continue to rise. Are we really going to delay granny's hip replacement so Joe and his cyborg girlfriend can have a baby together? Doubtful. Exhibit A: Wesley Smith's post on the recent debate in the U.K. over whether to cover surrogacy for the infertile. He writes: This is unbelievable: The NHS is seriously considering paying 15,000 Pounds (about $32,000) to surrogate mothers to gestate babies for infertile couples. This, from the same NHS that rations care to the elderly[...] Moreover, I think this will not only be the attitude of fertiles, but of many infertiles too. I recently had an interview with Gabrielle of Fertility Notes where we discussed just this question. (N.B.: I sort of blindsided her, so you probably shouldn't take this as her considered views on the subject.) She's a strong supporter of mandated coverage and an active "blogtavist." She's also a very sympathetic case: a young, married woman whose childhood cancer left her unable to have children. Most people would say her treatment should be covered. But her case, I pointed out, is weakened when combined with the functionally infertile. Resources are limited, and while most people would probably see Gabrielle's situation as deserving, they'd likely balk at the idea of funding a 62-year-old woman's IVF cycle with tax money. Gabrielle saw the problem, and agreed that there might need to be some limits on what we cover, though she wasn't sure what those limits should be. I think a lot of the biologically infertile would agree. So is it really "all for one, one for all" in the infertility community? Given the limits on the public purse (and public sympathy), is it better to get coverage for the few? And how do we decide who those few should be? Labels: coverage, infertility posted by Cheryl # 11:58 AM
Comments:
Cheryl, thank you for the mention and for raising these questions. Agreed the general public would very likely balk at a 62-yr old's quest for IVF funding. Have a look at what some other's thought when I took this (very unscientific) poll on this subject last week .
As with any mandated insurance coverage, limits will need to be set or else the fiscal note will ensure that any proposed legislation never makes it out of committee. There are some states that mandate infertility coverage (within limits) and those could potentially be used as a national model. The federal legislation that I have seen is not a carte blanche for baby making. There are definite parameters on what is covered and what isn't. While I appreciate that I could be seen as a sympathetic case in the matter, my scenario would NOT be covered in those states with mandated coverage as MY eggs are not the ones being fertilized. Another option (and I am just thinking out loud here) could be improving coverage around some of the most common contributors to infertility (PCOS, endometriosis, premature ovarian failure, cancers, etc.) to insure the secondary or resulting diagnosis of infertility. That would not address everyone's infertility, but it could provide the assurance that legislators and taxpayers need. But it all goes back to the question of is a little for a few enough, or is it all or nothing?
(Sorry to take up more space. I couldn't edit my previous comment).
While defining biological issues could be one way to achieve insurance coverage, the last thing I want to do is encourage a divide between those that are functionally and biologically infertile. Insurance is simply one issue. Many barriers that we found in our own quest for treatments that were obviously constructed to limit access to those functionally infertile (i.e. "you have to be married before you can make an appointment here.") were simply Barriers to medical information. A 62-yr old woman seeking motherhood would most likely be used as an example for legislators and other opponents of coverage, but a more likely scenario would be an older (but still young) woman in her 30s who felt that she could not adequately support a family until she reached a certain point in her career. That speaks to other societal issues beyond insurance, including but not limited to equitable wages and affordable child care. Perhaps focusing on insurance coverage and who it should and shouldn't cover is too narrow a focus. Perhaps we need to broaden the discussion to include the adequacy of research and resources around women's health. Period.
What is the underlying principle that should determine whose infertility treatments the government mandates? Is it just a matter of limited resources that need to be rationed according to urgency (ie, cancer is more urgent than biological infertility; biological infertility is more urgent than functional infertility, etc.)? Or is there a line to be drawn between pregnancies that are in the public interest, and those that aren't? Is having children every individual's right once the technology to make it happen is available?
It's interesting that you state that my post brings the differences into sharp relief because my point is that the line is blurred and some people stand so firmly in both categories (such as Gabrielle) that I think it is dangerous to draw a line between functionally infertile and biologically infertile.
Robert Stillman at Shady Grove had an interesting thought in Embryo Culture that helped with drawing lines for coverage. Just as we wouldn't induce ovulation in a child prior to first menses, we can use the general age of menopause as a guideline for determining the upper end of treatment. But within age limits, I would ask for a lack of discrimination creating a state of inclusiveness for single and married, gay and straight, biologically and functionally infertile alike. And this is not to say that those above the determined age of menopause should be kept from treatment--I'm not a doctor nor am I an ethicist so I don't believe I'm in a position to determine who receives or does not receive service. I also think you'd be hard pressed to find SART-accredited clinics that are performing DIVF on 62-year-olds.
Town Criers: How far are you willing to go in the name of inclusiveness? The case of lesbians and single women getting IVF is one in which people opt for a medical procedure intended to treat an illness they don't have because they believe it fits their lifestyle better than their own biological constitution does. A parallel situation that comes to mind is the demand by some people that doctors amputate their healthy limbs because they would prefer to live as amputees. Is this also something that the medical establishment should be obliged to perform, given that, as in the case of lesbians and single women, these people are seeking medical intervention not to treat an illness and restore health, but rather, in order to better live out their desired lifestyle?
Rita: I'm not sure about your analogy. Amputating healthy limbs would seem to go against the entire "First, do no harm..." thing. Also, the desire for children is a completely healthy desire. The desire to be missing a limb? Not so much. The would-be amputee needs to go to a shrink. I wouldn't counsel the same for a single woman wanting a child.
Isn't any invasive medical procedure not designed to treat an illness harmful, including cosmetic surgery? IVF is harmful, only the benefits for infertile women seem to outweigh the harm, just like chemotherapy would be harmful if cancer weren't even more so.
On what grounds do you distinguish between healthy and unhealthy desires?
Rita wrote: The case of lesbians and single women getting IVF is one in which people opt for a medical procedure intended to treat an illness they don't have because they believe it fits their lifestyle better than their own biological constitution does.
I am not sure I understand this comment, but I think you're saying that these women's infertility is social in nature — i.e., based on the relationships they have or do not — instead of biological. If that's what you're saying, allow me to correct you. IVF is an invasive, expensive method that is generally considered a last resort in fertility treatment. If lesbians and single women are undergoing IVF, it's not because of their "lifestyle," it's because lower-tech methods haven't worked. It's because they are biologically infertile.
They might be biologically infertile, but they haven't tried to get pregnant naturally, so it's not clear that this is relevant. The point is that they are choosing insemination because they don't want to be impregnated the old-fashioned way.
Rita: You are making all sorts of assumptions here that don't hold true. First of all, numerous lesbians (myself included) HAVE tried the conventional way to have children, with no success. Many of us HAVE (myself included) full fertility workups that disclose reproductive problems (low hormone levels, anovulation, etc). If you think that most people would try IVF as a first resort, you are sorely mistaken. The introduction of numerous fresh sperm the conventional way (while monitoring fertility), numerous IUIs (unmedicated and medicated), much testing (HSGs), and the like predated the IVF in our case.
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This is a red-herring issue that is used to derail compassionate coverage for infertility. My health insurance covers Viagra and treats male erectile dysfunction. However, it covers no diagnosis for my biological infertility. This makes no sense. And it's purely discriminatory. << Home Archives December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 December 2008 |